Monday, September 26, 2011

Dear Chemo...#8

Dear Chemo,

The infamous "they" say that the opposite of love is not hate, but indifference. The first time I heard that, I realized that I had wasted my energy "hating" a couple of people in my life, when I really just felt "indifferent" about them. It takes a lot less energy to feel indifferent. Hate is a really strong word, but it's not the worst thing in the world when you really think about it...and "hateful" is kind of fun - it is a charming little adverb.

Big sis Tiffany says it all the time, "Now you're just being hateful" or "That was justhateful." It is such a great Southern phrase. 

Example: Chemo, if you are killing my cancer cells, I love you. If not, I am indifferent. But Chemo, the numbness and tingling - Now that is just hateful!

Whatever it is you are doing in this body of mine, I can assure you that this time that we've shared together is O-V-E-R. This has been both the longest and shortest 4 months of my life, and I am done with you. In fact, I have a song I'd like to share with you...

You Just slip out the back, Jack
Make a new plan, Stan
You don't need to be coy, Roy
Just get yourself free
Hop on the bus, Gus
You don't need to discuss much
Just drop off the key, Lee
And get yourself free

There are, according to Paul Simon, 50 Ways to Leave Your Lover. So get on with your bad self, Chemo. 

My follow-up MRI is Friday. I will leave there with images and no report, and then I will get the report on Monday. I will pray every minute from now until then that you are effective in destroying these cells that seek to destroy my life with my husband and my beautiful children. I will continue to pray that the MRI shows shrinkage, which will indicate that the rogue cells (the "Rif-Raf") are also dying. And so Chemo, while I don't want to appear ungrateful, it is not with mixed feelings that I bid you adieu. I love you. As much as I love my own life, I love you. I love every bit of the nausea and the exhaustion. I love the day-dream like state. I love the forgetfulness of chemo-brain, and the reaching for words that I have known for 20 years. I love the joint pain and aching. I love the anxiety and the waiting. I love the days I spent in bed that took a mother away from her children. I love the boredom of the chemo suite. I love the time I've spent with Mama. I love the airport hugs I've received from my nieces. I love the baldness. I love the scarves and the drippy earrings. I love the support and the endless prayers. I would live every last minute with you again if it meant that I could be here another 50 years. I will not miss you, but I love you. I cannot tell you enough that I love you, and that it is not with mixed feelings that I say goodbye. I cannot find enough ways to say goodbye.

Au Revoir. Farewell.(Blow a kiss). Bye, hun. Adios. Ciao. See ya on the flip side. Buh-bye, now, thank you for flying Bean's Cancer. Closing time. (Kiss, kiss). By-eee. Love ya! LYLAS. Syonara. (Silent wave.) Auf weidersehen. TTFN. Goodbye. Later gator. (Middle finger). Last call! Good riddance. TTYL. Godspeed. Hasta la vista. I'm out. Na-na-na-na, na-na-na-na, hey, hey, hey, goodbye. (Princess wave). Unhello. Mwa! May the force be with you. Peace. Cheerio! Aloha. So long. Arrivaderci. F*CK off!(Sorry...Mama says there are very limited times where the F-bomb is appropriate in life, but I think that even she can agree that this is one of them.) Bye, y'all! Hasta manana, iguana. You don't have to go home, but you can't stay here! C U L8R. BRB. (Wave fingers only.) Pip pip. I'll miss you (not!). Keep it real. Peace out. Tallyhoo. Get yourself free. Ta-ta (so appropriate).

My all time favorite goodbye...Tootles.
Bean   

PS Turns out, there are more than 50 ways...

Tuesday, September 20, 2011

Clashes and Flashes


TUESDAY, SEPTEMBER 20, 2011 9:57 PM, EDT
Clashes and Flashes
I would relive every moment I have ever had just for this one!There's something truly amazing about a thunderstorm. Clashes of thunder, pouring rain, and flashes of lightening - there is just so much energy, coming together in musical genius.  Another Bambi reference comes to mind when discussing a thunderstorm - baby Bambi huddled next to his mother in the thicket while cymbals and strings create the terrifying, yet intriguing performance of thunder and lightening. He finds comfort in the warmth of his mother...and the clashes and flashes clear.

I often describe motherhood as this incredibly elite club that you never knew you could be a member of...until you have officially joined. You aren't invited, hazed, recruited (well,some are recruited)...you go through this indescribable (though many of us try) journey, and then the storm clears -you are a mother. You have all the love in the world for a new life that you created. And finally, you realize that all this time you thought that you would jump in front of a bus for your spouse...and that feeling now seems so trite! You can'tjump in front of a bus to save your husbandYour baby needs a Mama! But you would jump in front of a bus for your baby! 

I remember the first time I told Mama that I had no plans to have children. I was 22, dating Nathan, and neither of us wanted children. She responded, "Well, I think it's perfectly wonderful that you are so selfish!" And she meant it, too...with no intent what-so-ever to offend. But it was too late. "I'm not selfish because I don't want kids...It would be selfish to have them knowing that I don't want them!" End of conversation. We agreed to disagree.

One month prior to getting married, I was ready to send out our wedding invitations. We already had 40 people going to Mexico to celebrate our marriage, and I am pretty sure that we were the only ones who insured our trip. I sat Nathan down, and I said, "Nathan, I know that we have talked about this time and time again...but I've changed my mind. I want children." Crickets. "Not right now, but I know I am going to want kids. So if you want to go to Mexico and have a blast, and tell our friends and family that we decided not to get married, then that's what we'll do...but I am telling you now, I am going to want to be a mother." He simply said, "I want what you want...but can we wait a couple of years?" Two years later, we owned a house in Wisconsin but lived in Nevada. We were in no state to even discuss having children. But when we sold the house, we decided to start a family. We promised over dinner one night that we would not stress about babies...if it was meant to be it would be, but otherwise we were perfectly happy "just us." We were pregnant 2 weeks later. We never felt like anything was missing until we had Logan - turns out, he was missing all along. And there it was...my induction into the most elite club I have ever been a member.

When I was pregnant the second time, I couldn't imagine how how in the world your heart could have room to love another being as much as you love this baby in front of you. And there it was when Parker was born. It was as if a new part of my heart opened up when Parker was born, allowing the same amount of love for the second as I have for the first. He just fit right in...as if he too had been missing all along.  How is that possible? To have a part of my heart that I didn't even know I had? Is it possible that a part of my brain shut off so that a new part of my heart could open?

My brain shuts off. They call it chemo-brain. Your thoughts get lost, synapses don't fire, thoughts don't connect. You can't find words that you've known and used for years. I find myself wishing that I had Wordly Wise workbooks to work on in chemo...just so that I can keep meaningful words on the front burner. Chemo brain. This is my cloud cover before the storm. Fog.

Irritability. Thunder. Comes and goes, makes a big noise, irritates and befuddles those around me. Thunder.

My ovarian function has officially been "interrupted" by chemo. I know this because I officially have hot flashes. My heart goes out to every menopausal woman on this planet. How do I describe a hot flash? Hmmm. Lightening. Picture a rush of anxiety, accompanied by the overwhelming desire to strip every stitch of clothing off of your body - not in a Carmen Electra Stripper Work Out kind of way, but an if-I-don't-get-these-clothes-off-in-a-hurry-I'm-going-to-DIE kind of way. All of this followed by a feeling that you look like Jennifer Beals in Flashdance, just after she finishes dancing - "She's a maniac, maniac on the floor...and she's dancing like she's never danced before..." Only Jennifer Beals makes sweaty look sexy, and there's nothing sexy about a hot flash. It feels wet and dirty, and all you want to do is take a dip that will have you coming out of the water looking like Bo Derek in Perfect 10. Ahhhh. Lightening.

Through all of the fear and anxiety, I have found a real cleansing in The Cancer Blog. Pouring rain. Tomorrow marks what I like to call the "half-way point." Tomorrow is my last chemo treatment. It marks the closing of one chapter and the opening of another - surgery. During this storm, I have found much comfort in the thicket with faith, my friends and family, and for that I am truly grateful and fortunate. I feel all the energy of the storm around me, I look forward to the day when the clashes and the flashes clear, and I am waiting for the sunshine...and the moonbeam.

Sunshine and Moonbeam (which I sing to Logan every night, to the tune of "You Are My Sunshine")

Logan's my SUNSHINE
And Parker's my MOONBEAM
They make me happy
When skies are grey - or black - or white - or blue!
You'll never know dears
How much I love you - and you - and you and you
So please don't take my SUNSHINE and MOONBEAM away!

Wednesday, September 14, 2011

Humpty Dumpty and Jesus


Little sis Jayme classifies people into one of two categories...good or bad eggs. A good egg is, of course, someone who meets a certain criteria, which Jayme defines at will to suit a given situation. A bad egg, likewise, does not meet a defined set of characteristics, but criteria determined by the situation. One can be both a good egg and a bad egg, but not in the same circumstance. But mostly, when one hits good egg status, he or she stays there in Jayme's head and rarely ever hits bad egg status moving forward. Jayme is, in my opinion, a good egg. She has a heart of gold, and is a true friend. And she is friends with all types of people. She has more friends in different circles than anyone I've ever known...a lot of unlike friends. It's like she takes a little bit of herself and connects with someone that way. And once her friend, a friend for life. She is a good egg.

Mama has a presentation that she shared with me once called "Carrots, Eggs and Cocoa." It's a great management presentation, and I love it's complexity and significance to a team. The presentation describes what happens when you place 3 different items (carrots, eggs and cocoa) into hot water (your job). Eggs have a soft heart before they go into the hot water, but they come out hard boiled and are served with a cold, hard center. Even a good egg can change under pressure and end up with a cold, hard heart. We don't want to be eggs or carrots when work becomes hot water...but we want to work together as many ingredients (a cohesive team) coming together to make the water (work) something great (i.e., hot cocoa).

When I was told that having breast cancer at 32 raised my chances of having a 2nd breast tumor (not a recurrence, but another breast cancer altogether), I came to grips with cutting Bess and Gretchen out of my life for good. When I was told that that chance varied between 25-50% (the longer I live, the greater the percentage), I had no doubt that a bilateral (both) mastectomy was the right choice for me. At first, I thought, "Wow! I'm going to end up with a boob job out of this deal!" I mean, let's be honest. I've been a 36DD since my Sophomore year at Alabama (yeah, late bloomer). I've had two kids. Bess and Gretchen aren't in all that good of shape these days anyway - so the thought of having perky breasts again was kind of enlightening. And then there was the voice of reality. As I was surfing the internet for the shape and size I wanted, it hit me that I might better be looking at pictures of reconstructed breasts. Gone were the thoughts of perky Blake Lively breasts. Nope, those thoughts no longer live here. They been replaced with our good friend reality. Reality brings images of scarred breasts and tattooed nipples (yes, tattooed - I don't get to keep my God-given nipples - there's an eye-opener). Now, there is some really nice reconstruction work out there...I just have to find it.

I've had 3 surgical consults for reconstruction. My mastectomy surgeon, Dr. Hatmaker, has been with me from the beginning. She explained that I am havingreconstruction, as opposed to cosmetic surgery, and that I would want to meet with surgeons who are sensitive to the needs of a breast cancer patient. She also encouraged me to meet with as many reconstructive surgeons as I needed to meet with to feel comfortable with my decision to have a mastectomy and reconstruction.  She recommended 3 different surgeons for reconstruction. 

My first consult was with a primarily cosmetic surgeon in town. He comes highly recommended from anyone who has had cosmetic breast surgery in town. He does really nice work. He used to do a lot of reconstruction, but is now primarily cosmetic. But you know, I am 32 years old, and cosmetic is still important to me. I don’t just want to be put back together, but put back together nicely. So I went to see Dr. 90210 to see what he had to say. The appointment was lovely. The staff members served me a Diet Coke with a straw (so as not to disturb my lipstick, I imagine). They took pictures of me from 5 angles – straight on, 45 degrees to left and right, and 90 degrees to left and right. They printed the pictures and Dr. 90210 discussed the “natural droopiness” of Bess and Gretchen…where they’ve been, where they are now, and where they should be. I left confident in his ability to get Shelby and Yvette in the right direction - but he was still cosmetic.

The second consult was in a disheveled office. Frumpy staff, paperwork mountains everywhere, some sort of product on the walls that I can only assume is a splash of something that wasn’t cleaned up after a spill. While I liked Dr. #2, and I learned a lot from her, I will use this as an example in my professional life about what a healthcare space should not look like. I left thinking, “If you can’t take care of your office then how can you take care of me?”

I was getting discouraged by my third appointment. I went into the well-decorated and well-cared for office of Dr. #3. The office was busy, and we waited for a while to see the surgeon. This was explained to us throughout the appointment, which lasted 2 hours. While some people would be concerned with the wait, I was more interested in the “why.” The surgeon explained to us that although it was unusual to happen like this, he had 4 breast cancer patients in the office (in different rooms) overlapping. I thought it was refreshing to know that there were that many breast cancer patients consulting with or following up with him! That means he likely sees a lot of breast cancer patients, and he is familiar with breast cancer reconstruction. What he didn’t say is that breast cancer patients require a little more attention because the matter is so sensitive. I can only imagine who most of us are…breaking down uncontrollably about losing our breasts and having to be pieced back together like Humpty Dumpty. The reality is, if all the king’s horses and all the king’s men couldn’t put Humpty together again, how can one man put me back together in a way that is pleasing to look at? And that’s the cosmetic piece. Nathan and I left the appointment, not focused on the lengthy appointment that we had, but on the connection that we felt with the surgeon. At some point during that connection, I gave Dr. Quintero my blog site. He sent me an email at 1:18am that solidified the connection. His email was an apology for the wait time, but he also connected on a personal level. He told me that the top songs on the chart in February 1979 (my birth month) was "Do ya think I'm sexy?" by Rob Stewart (in reference to my "oozing sexiness" blog post) and Gloria Gaynor's "I Will Survive." Let's call that a God-wink. The next song was "Tragedy" by the Bee Gees (which I'll have to look up the lyrics to), followed by "I Will Survive" again! Now if that's not a God-wink I don't know what is! He also shared a story that I am going to share without his permission, but I found it so inspiring that I cannot resist.

Dr. Quintero said he ran into “Jesus” one day…”not the Jesus Christ, but the Mexican guy who cuts the grass in my neighborhood…I talked to him one afternoon that he saw me kind of sad and I explained to him [some personal] circumstances. He told me ‘Don't lose hope or faith, because God sometimes squeezes hard, but does not intend to choke us’. Great advice and words of encouragement, and coming from someone who's name is Jesus. Kind of Funny.” Mama is going to die when I write this, but I feel for some reason that this man is supposed to rebuild my body. He is my “king’s men.” He did show me some pictures of his work during my appointment, and he does do nice work! He’s a good egg. That Jesus is a pretty good egg, too.
The point of my sharing the story is this: God speaks to us in mysterious ways, and it is up to us to hear the message. You wouldn’t expect it to come from a landscaper, but wisdom like that coming from Jesus is pretty crystal clear! When it’s that good, you have to put your listening ears on…and prepare to pick up the pieces.

Sunday, September 11, 2011

A lifetime in a decade


SUNDAY, SEPTEMBER 11, 2011 4:22 PM, EDT
10 Years
In the past 10 years, I:

 fell in love; 
lived in 3 states; 
was involved in 3 car accidents; 
had 6 jobs; 
had 19 bosses (yeah, in only 6 jobs); 
graduated with 3 degrees; 
had 2 children; 
lost a best friend; 
have only kissed one man; 
have been on 3 cruises;
 vacationed in 7 countries; 
gave birth to 2 boys; 
lived in 6 residences; 
got married; 
owned 2 houses; 
drove 4 cars; 
was diagnosed with breast cancer;
began my fight to live.

When I think of everything that I have accomplished in the last 10 years, it is no wonder I have an "old lady tumor!" I have lived a lifetime in the last 10 years, and I hope to have 9 of those lifetimes. Like a pompous little kitty has 9 lives, I hope to live a lifetime in each decade.

Ten years ago, I was in school. I had an Outpatient Radiology rotation at the University of Wisconsin Hospital. There was a television in the waiting area. It was 8am Central when I came breezing through, unaware of the morning's news. Patients, physicians, visitors and students were gathered in the waiting area, gazing blankly at the television. My mouth hung open and tears filled my eyes quickly. No one understood at that moment that the airplane that struck the World Trade Center first was the beginning of what our "new normal" would be. Ten minutes later, as we watched the screen, the second tower was hit by a subsequent plane. That was that - America was under attack. All of this further confirmed when we learned about the 3rd plane having crashed into the Pentagon and another in a field moments later.

We all remember where we were that day. If you don't know of a single person who was killed on September 11, 2001, you at least know of someone...6 degrees, right?  God bless the families and friends of those brave men, women and children who were taken that day. We will never forget.

What kind of lifetime have you lived in the last 10 years? I encourage you to think about the accomplishments and setbacks of your lifetime over the last decade. Consider yourself blessed that you had the opportunity to experience every moment. Remember those who fight for your opportunity to continue to experience these moments, and those whose opportunity was taken from them. 

Never forget,
Bean

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Saturday, September 10, 2011

Dear Chemo...#7


SATURDAY, SEPTEMBER 10, 2011 2:07 PM, EDT
Dear Chemo #7...
Skyping through ChemoDear Chemo,

I'm sure that you are sitting there thinking, "You don't call, you don't write..." but I just don't have anything NEW to say! You are pretty predictable, and for that I am grateful. My side effects (numbness of hands and feet, crabbiness, joint pain) are here, but manageable. My blood count Wednesday was almost completely normal. That's about as good as it gets the day of treatment. While that doesn't give me any indication that you are working, it does allow me to feel up to par through treatment. When I start with a good blood count, I feel better physically, which puts me in a good starting place emotionally.

Blood counts are also important because they have to be normal in order for me to have my surgery (late October/early November). The faster they bounce back, the sooner I have my surgery, and the sooner I'll know my lymph node status and final staging. Staging gives a better indication of prognosis (or outlook), which is basically my recurrence possibility and life expectancy now that I've been diagnosed with invasive breast cancer. So staging is pretty darn important. We expect a Stage II, and are hoping for no higher - and no lymph node involvement. Lymph nodes are kind of a train station for rogue cells. They can pick up a ticket to the bones, lungs or brain at the lymph node station.

So keep being predictable, chemo. Keep letting my blood count come back up. And chemo, if you and I could work out a deal for you to kill those rogue cells in my bloodstream, that would be perfectly acceptable...actually, you and God work that one out.

See you on September 21 for our last encounter!
Bean

Friday, September 9, 2011

Unforgettable Gifts


FRIDAY, SEPTEMBER 9, 2011 8:50 PM, EDT
Unforgettable gifts...
I would relive every moment I have ever had just for this one!I've made no secret of my love for Philosophy products. Aside from the fact that I love a product that sells itself, I just cannot get past the little words of wisdom on those bottles...I've used Amazing Grace for years now. BF Nicole gave me a super cool Christmas gift one year. It was a perfume sampler from Sephora. It came with about 15 different high-end perfume samples, and a voucher to purchase the bottle of the recipient's choosing. I spent weeks trying the samples so that I would end up with the perfume that suited me best, and that was Amazing Grace. I loved the scent...the words of wisdom I discovered later.

Philosophy products keep creeping up from time to time...dropping their little "God-winks" at the most opportune times. Mama calls it a God-wink when things pop out of nowhere to let you know that you are on the right path. No one can tell you what is and is not a God-wink...you just know.

When I first interviewed in Louisville, I interviewed with a prospective peer, Emily. Emily is the ER Nurse Manager in my building, and she has just given me one of the most thoughtful gifts that anyone has ever given me. She gave me a bottle of Amazing Grace shower gel. Thoughtful, you ask? What's so thoughtful about that?! What is so thoughtful is that she took a picture of me and my children and placed it on the bottle via Philosophy's website. Furthermore, Emily gave me my own little words of wisdom...the bottle states, "Philosophy: Mommy loves you better than the whole world." Thanks, Em. I showed the bottle to my nieces Olivia (9) and Ann Marie (7) this past weekend...they think I'm famous, which is an added benefit!

Philosophy has a Shower Gel called "Shower for the Cure." Aside from the fact that it is a beautiful and clean scent, proceeds from sales go to breast cancer research. I copied the Philosophy a couple of years ago when we opened because I wanted to remind team members that our patients were not only patients, but that they had other lives...lives we don't see that make them just like us. I wanted to share it here because it has truly struck a chord with me on a different level now...both for personal reasons, but also because it resonates with me with regards to so many people I have met over the past few months. Share it with whomever you like...it is truly a beautiful reminder that we are not invincible...or invisible.

unforgettable...

she is a mother who can think only of the welfare of her children.
she is a wife who wonders if her husband will still love her.
she is a daughter horrified of the thought of breaking the news to her aging parents.
she is a sister, a soulmate, the best girl you know.
she is a friend; a real bosom buddy.
she is a neighbor who now needs a friend.
she is an executive who has lost her control.
she is an employee who wonders how she will keep her job, pay her bills, take care of her child, while trying to recover.
she is a patient who fears losing her life.
she is a doctor who must now save her own life.
she is a beauty who will always be beautiful.
she is a woman who never did feel beautiful.
she is famous and now she wishes she wasn't.
she is a stranger who you can't see, but she can see you.
she is a person whom you have yet to meet.
she is you, she is me.
she is...unforgettable.

I posted some new pictures...we have had an incredible Summer, despite the great oncologic interruption. We have good days, and we have bad days...but overall, it's been an amazing couple of months filled with family and fun. Thank you all for your continued prayers - keep 'em coming! The next few months are going to be difficult, but we are ready. One more chemo to go - September 21st! 

LOVE!
Bean